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Axial spondyloarthritis ( Ax SpA)


🔸Ax SpA affects soft tissues , joints , tendons and sometimes other systems such as skin, heart, lungs, stomach, eyes etc


🔸Age - onset can be 20-45


🔸Prevalence 1 in 200 in UK


🔸Males and females are affected


🔸Males are diagnosed more frequently than females


🟠These conditions present with


🔺Back pain , buttock and other joint pains


🔺Early morning stiffness >30 mins usually up to an hour


🔺Inflammation in eyes (redness) called iritis or uveitis


🔺Psoriasis ( skin condition)


🔺Dactylitis (Swollen fingers or toes or both)


🔺Waking up at 3-4 am with pain that feels better after movements


🔺Enthesitis (Tendonitis) - heel, shoulder, knee elbow etc


🔺Feels better with exercises


🔺Feels better with ibuprofen or prescribed anti inflammatory medications ( naproxen celecoxib etc) within 48 hours


🔺Family history of Rheumatoid Arthritis or inflammatory arthritis


🔺Constipation, bloating, diarrhoea ( Irritable bowel syndrome (IBS), Chron's ulcerative colitis)


🔺Fatigue and tiredness



🔸Diagnosis


🔺There is delay in diagnosis of an average of 8.5 years in UK.


🔺This affects the individual physically, emotionally, socially and financially.


🤔Reasons can be


👉🏼Normal inflammatory markers (ESR CRP HLAB27 ) on blood tests


👉🏼MRI can show inflammatory changes in spine of sacroiliac joints if reported accurately


👉🏼Not all symptoms are present all at once 😔


👀Knowledge of the condition and its presentation


🧩Joining the puzzle pieces with different symptoms over the years can help


🔸Management


🔺Physiotherapists help with a structured programme for managing your joint and muscle pains


🔺Hydrotherapy is recommended for better mobility


🔺Referral to occupational therapist, podiatrist, orthotist, psychologist , social support- depending on your symptoms and circumstances


🔺Contact healthcare professional to be referred for tests and diagnostics and referral to Rheumatology


🔺Discuss your medication options with your rheumatologist who can also refer to other specialists for managing gut, skin or eye symptoms.


🙏I am working with National Axial Spondyloarthropathy association ( NASS) to spread awareness and reduce this diagnostic delay of 8.5 years, please help us help you


👉🏼Fill this form and take it to your GP https://www.actonaxialspa.com/symptoms-checker/






👀If you have been already diagnosed with this condition


👉🏼Find resources attached here to help you or your loved one suffering from this condition








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